Mar 20, 2020

Brave Kansas

Kansas finally got approved for Genetic testing to see if there are any Myasthenia Gravis genes in her blood. It took forever to get approved, but when Kansas started having some major eye dropping when she got sick with a virus, her paediatric neurologist fast tracked her paperwork and we finally got the paperwork to get the bloodwork done. We went first thing this past Monday morning and because of the Coronavirus it was super slow. We got in right away and the lab technician was so wonderful and patient with Kansas. Kansas was so incredibly brave and sat so still and watched as the lab tech took the blood from her without crying or wincing once. They were so impressed with her they gave her extra stickers and play dough. Now it is time to be patient and wait for the results as it can take 6-8 weeks to get the results back. Possibly longer with the craziness of the Coronavirus right now.


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